When Andrea’s mom and partner left to inform family members outside, she lay alone in the ward, not knowing what was happening. Still, no one told her what was wrong with her baby.

It transpired that the right side of his stomach and his entire right leg were marbled purple and black.

The diagnosis

After a time, Adam was diagnosed with Cutis Marmorata Telangiectatica Congenita (CMTC), an extremely rare vascular malformation.

Andrea and her husband didn’t know how to react. At the time of their son’s birth, there had been only 500 reported cases of the disease in the world … ever.

Adam underwent a multitude of tests on his vital organs, which, fortunately, he passed without issue. Andrea spent so much time in the NICU that she didn’t sleep for four days.

In the end, Adam was able to go home, with a strict set of instructions on how to care for his skin. The more time that went by, however, the more it became apparent that Adam was a true fighter.

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