Every parent dreams of the moment they hold their newborn for the first time — to hear that first piercing cry, to feel the tiny warmth of a fragile body pressed against theirs, and to be overwhelmed by the breathtaking promise of new life. Those moments are meant to be filled with joy, hope, and boundless possibility. Yet, for some families, the world shifts in an instant, and instead of celebrating milestones and first smiles, they find themselves standing beside a hospital bed, watching their child fight for each fragile breath. This is the story of our beloved son, Julian — our fighter, our “sunbeam,” and our eternal source of strength and inspiration.
Julian — lovingly called Julek — entered the world in May 2024. His birth brought a mixture of joy, shock, and profound uncertainty. Almost immediately, doctors shared news that would reshape every dream we had made for him: Julian had trisomy 21, more …
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