Michelle’s face was large and innocent. She had a nose like a little beak, and she was balding. It was discovered that she had Hallermann-Streiff syndrome, a hereditary illness of which there are only 250 known cases worldwide.
Michelle was born at Children’s Memorial Hospital, where no one had ever seen it in person.
When the doctor told us we had Hallermann-Streiff syndrome, my heart fell. “I was concerned about how we were going to care for our child who had a rare genetic disease that was one in five million,” Michelle’s mother said.
Michelle exhibits 26 of the 28 symptoms that are associated with the condition. Although the sickness affects only one in five million people, it can lead to a variety of health issues.
CONTINUE READING ON THE NEXT PAGE
Garlic Chicken with Broccoli and Spinach Delight
The Ultimate Fat-Burning Drink to Melt Belly Fat Fast
Put your hands together — if these two lines on your palm match up, here’s what you need to know
Sugar-free condensed milk with just 3 ingredients! Easy, delicious and economical
Fantastic recipe! Saw a neighbor bring this to a block party, and everyone went bonkers for it!
A Study Reveals: Your Body Knows When Death Is Near, And It All Begins In The Nose
