Treacher Collins syndrome was the unusual prenatal disease that caused the adorable little boy’s facial bones to develop asymmetrically.
The physicians informed Jono’s parents that he would probably never walk or talk in addition to the diagnosis. Jono’s parents, who were stunned, decided it was too much and left him.
My parents were really taken aback when I was born. Within 36 hours of my birth, I was discharged from the hospital. Someone was assigned to look after me by social services. At the 2015 Nord Conference, Jono recalled the foster carer as a woman named Jean.
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