However, Jono quickly made the decision to be a force for good and use his experience to serve others thanks to Jean’s love and care as well as his own strong spirit.
Jono, who is 36 years old, has dedicated his life to supporting others with Treacher Collins syndrome worldwide. He has been leading adult autistic people’s teams.
He meets kids, offers them encouragement and hope, and has a conversation with their parents about their predicament. At the moment, Jono works as a motivational instructor and frequently discusses Treacher Collins disease.
He claims, “My parents still don’t want anything to do with me.” “My mentality has changed, and that’s what makes it so effective. […] I wouldn’t alter a thing. More than anything, my attitude was incapacitating. You can accomplish anything if you have the correct mindset.